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Beating the odds after being diagnosed with Premature Ovarian Failure

My name is Cole. I’m writing this today because I feel it is important to get my story out there to as many women as possible. To give inspiration to those wanting a family but are suffering from infertility and encourage them to not lose hope. I am 34 years old and had come off of birth control last summer after seventeen years. When I didn’t get my period back after four months my OBGYN recommended I see a reproductive specialist. Upon doing so I was given a battery of blood tests to measure my hormone levels. When the test results came back I was given the shock of my life. The numbers indicated I was POSTmenopausal with diminished ovarian reserve.

My ovaries had stopped responding. I was given the diagnosis of Premature Ovarian Failure (POF) and was told I had a one in ten million chance of being able to conceive. The docs said that In Vitro Fertilization (IVF) wasn’t a consideration since my ovaries were unresponsive, and that our best hope for having a family was using donor egg. Devastated, my husband and I mourned the loss.

Not long after my diagnosis, I began researching my condition and seeking out any information I could that might give us some hope. But with every article I read I felt hope slipping away more and more. Western Medicine dictates that there is no treatment proved to restore fertility in women with POF. Most web-sites encourage women with POF to understand and grieve for this loss of ovarian function and to seek counselling if needed.

So I began searching alternative and Eastern Medicine and it is there I found some answers. Shortly after, I found a Traditional Chinese Medicine doctor and began weekly acupuncture treatments and taking Chinese herbs daily to naturally stimulate the promotion of estrogen in my body. I also found a slew of other alternative suggestions ranging from herbal supplements to fertility massage, yoga and even castor oil packs. I was willing to try anything! After three months of a steady daily regimen of all the alternative treatments I had my hormone levels retested. They had gone from postmenopausal levels to NORMAL. Two weeks later I spontaneously ovulated!

The reproductive specialist I was seeing said that ovulating gave me a potential window of opportunity to try IVF. He said there were no guarantees that I would ever ovulate again, and that the fertility drugs may not even work, but we could try IVF if I wanted to. This was a very difficult and expensive decision for my husband and I, especially since we’d have to decide right away, as with IVF you have to start as soon as you get your period after ovulation.

As it turned out, we didn’t have to make that decision. During ovulation my egg was fertilized. I was PREGNANT!!! We couldn’t believe it. The doctor couldn’t believe it! But it was true. After a few weeks of being monitored that my hormone levels were doing what they should, I had my first ultrasound. You can only imagine the look on our faces when we found out I am having TWINS!!! My doctor was floored! He wants to put me in a medical journal because of the circumstances.

We now know they are fraternal boy/girl twins, which means I ovulated with TWO eggs! The doctor said my ovaries could very well go back to not functioning once the babies are born, so we are blessed with having an instant family in one shot! Given that twins do not run in our families, I have no doubt it was all the alternative treatments and Eastern Medicine I was taking. It completely turned my diagnosis around in a matter of only three months! Even crazier, my due date (January 20th) will be the EXACT date one year later from when I received the news that I could not have children! Just goes to show you that anything can happen!

Throughout my experience, I had started a blog to share all I was going through and what I was doing in my fight to get pregnant, despite having POF. I had no idea it was going to have such an amazing ending. I constantly have women writing me telling me that my story has given them hope and they are trying all the alternative things I did to get to where I am today. This truly means the world to me as I know what it is like to be given the devastating diagnosis of infertility. I would love to get my story out there to share with other women who are suffering with infertility to instill hope and encourage them to never give up!

You can read Cole’s blog here.

Share your thoughts on Cole’s story in the comments section below, or submit your own fertility story here.

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7 Responses to “Beating the odds after being diagnosed with Premature Ovarian Failure”

  1. Shay says:

    Thank you so much for giving me hope. I was diagnosed earlier this year with POF, and the REs pretty much recommended donor eggs or adoption since my FSH and LH were so high. However, I am not giving up. After reading your blog and this article, I am going to find a TCM practitioner and acupuncturist, and start taking some natural supplements such as maca, vitex, DHEA, and etc. for 6 months. I refuse to believe all hope is lost; I have faith that God will provide the seed. I will be the one in ten million as well.

  2. Inez says:

    I too was diagnosed with POF over a year ago. I’m hitting my 40th bday in a couple of weeks and am pregnant! We were going to a fertility clinic that really did not want to deal with us as we wanted to continue with trying to conceive naturally. We did cycle monitoring for several months and then stopped going to the clinic which pretty much told me that the best option for me was the egg donor program. So glad we decided not to rush (even due to my age) as within a couple of more natural tries (without the stress of cycle monitoring!!), I was pregnant! My FSH levels indicated that this was almost impossible to happen. Now I believe that anything is possible!!!

  3. Priya Kapur says:

    Hi.
    Your post has really inspired me. I am 22 years old and have been back and forth with my doctor due to not having a period in 9 months. My doctor referee me to hospital in August and after tests they sent me a letter advising signs of POF. I was so scared and cried for hours and still cry to this date about it. Your story has made me believe that I can do something about it. My friend saw an acupuncturist and say he was amazing so I may just give it a try. Thanks so much xx

  4. Amavel says:

    Hello there,

    I just wanted to thank you for your amazing story, i already read it before and it just gave me goosbumps.
    I’m 33 years old and i had the diagnose POF on the 2th of october last year (my birthday) i didnt had a period for almost 4 months but since 24 of december 2014 they have returned, my highest fsh is 111 but i’m still having hope, my cycle came back after using shatavari and doing the accupuncture.
    I hope with me also a miracle can happen.
    Thank you again so much for sharing your story and i wish all the best.
    Greetings from Holland

  5. KitkatGirl says:

    This story is really inspiring. I’ve had the diagnosis of pof since I was 19 and never had a period by myself, I was put on hrt and have been on it since. They couldnt find a reason for my pof all tests came back normal apart from the elevated fsh and low estrogen. After the initial shock I didn’t give it much thought, I was young went to uni started working life was good. I am married now to an amazing guy who supports me. However I realised that I want to be a mum more than anything, to have a family with my husband.

    I’ve got to a point where I will try anything, I’ve started accupinture with herbs and take wheatgrass, macca powder and royal jelly daily.
    I’ve also been off the hrt for a month and a half, since then the hot flashes are back and I haven’t had a period yet, it’s all do depressing sometimes but I still have hope!

    Since I’ve been off hrt I’ve been doing opk tests every day and last week I had high fertility ()

  6. KitkatGirl says:

    ….. Pressed enter too quickly!

    So I’ve had high fertility (flashing smiley) which I assumed meant my estrogen was rising and then I got a positive ovulstion test (static smily) for 2 days so fingers crossed it means there a positive change happening!

    I don’t think I want to be off the hrt for too long especially with the constant annoying hot flashes! My gp also said my breasts could sag so no thanks I don’t want to be baby less and with saggy breasts. I will have been off hrt for 2 months next week so I’ll get my hormones tested again and see what happens although with these constant hot flashes I can’t see it being good news. Oh well

  7. Eze christiana says:

    I was rifted after reading this post. It is devastating & mind blowing when facing infertility issues. I am 35 yrs. I was diagnosed of pof but yet to undergo hrt therapy as I was required to run another series of hormonal test. I had really want to go for this acupuncture treatment.

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